Reimagining Resilience

Category: Chapter 6- SCT round #2

  • Day +66- living between two lands

    2026 is just days away and I’m tempted to take a long deep breath. What a year it’s been. Our family accomplished something that back in January felt impossible. Like everyone else December was packed with holiday magic making while also managing some engraftment side effects. Thanks to my 100% engraftment status(praise God) I’ve had…

  • SHOUTING FROM THE MOUNTAIN TOPS. (day +38, take 2)

    Praise God. Oh mylanta, PRAISE GOD. Today in clinic we got the results of the bone marrow engraftment studies. These are the day +30 labs that let us know how strong my new graft is and I am crying telling you that it was 100% Donor. There are 3 tests- every. single.test.was.100%.Donor For reference, we…

  • Faith isn’t proven like gold till it’s been through the fire.(Day +20)

    The last week has felt like a complete blur. I was re-admitted to the hospital on 11/10 for a fever and now am recovering from a cold. I was able to discharge after a couple of days, after we determined the source of my infection and my team felt confident I can manage symptoms at…

  • Day +11 (take 2)

    This week post transplant has gone as expected. I was able to discharge the hospital on day +5 and be home for Halloween. Every day since discharge I am seen in the outpatient transplant unit (OTU) for what I lovingly refer to as my oil change. 🙂 CBCs and metabolic panels are drawn daily and…

  • DAY ZERO (take 2)

    With a grateful heart I can write that day zero has come and gone. ❤ I spent the majority of yesterday processing the experience. I was absolutely flooded with support and well wishes via social media and texts. Thank you to everyone who participated in that. It’s selfish to admit but I needed that reassurance.…

  • Guess who’s back back, back again.

    Transplant #2 is officially on the way and after over six months of delays I truly couldn’t be more thrilled. I know that sounds weird. I’ve become an expert at holding two truths: The transplant process is an unbearable burden…and also, I need it to cure this cancer once and for all. My spirits are…

  • Riding the wave

    Hi friends, it’s been a minute. I’m having a hard time focusing this post, a lot of life has happened. I could write about joy and the gift the entire month of August was to our family. I could write about disappointment; my transplant dates have been delayed due to an issue with my donor.…

  • Well, fuck

    Delivering bad news is exhausting and in my experience the best way is to be direct. I’ve relapsed. My lymphoma is back. I’ve been at significant risk of this ever since we learned my transplant failed in Dec/January. The transplant is meant to replace my immune system that does not fight off these cancer cells.…

  • SCT Evaluation #2 Complete

    Yesterday, Cullen and I had a bittersweet REUNION with my transplant team to kickstart my (second round of) transplant evaluation. I had a long day of back to back appointments and meetings to discuss the new SCT protocol. I topped off the day with another blood transfusion. I won’t get in to the specifics of…