Reimagining Resilience

Category: Chapter 5- After SCT

  • A micro-ounce of hope

    We’ve had a lot to process over the last month, mainly grief. We are grieving what we thought this season was going to look like (survival mode vs. restoration), grieving the impacts another SCT will have on our kids and grieving putting our life on hold again. The main feeling that has been absent is…

  • Preparing to head back up the mountain

    I had the hematology/oncology appointment yesterday and this is what we know: -My body has rejected my donor graft (my immune system is apparently just too stubborn to let the new cells do their job) -My graft the first 120 days was stable, now it’s not -I will go on a month of heavy immunosuppression…

  • New Year, Same Me

    My donor graft is failing. There’s no need to sugar coat it at this point. It’s happening. My blood counts all through the 100 days were “low but stable.” Not requiring any intervention besides a Neupogen shot every now and then to boost my white cells. The week after Christmas I noticed a significant dive…

  • Day: who even knows anymore

    This is just a quick update from the GYN/ONC appointment this week. I had repeat imaging done on Wednesday and it shows the tumor is stable. Due to my blood counts still being so low my MD doesn’t feel I’m medically stable for surgery. We will re-image in three months (with hopefully increased blood counts)…