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Captain’s Log Day -8 and -7
The countdown to transplant day has begun. Every day leading up to transplant has a (-) next to the number. Transplant day, August 13th, is day 0 and every day post transplant will be (+) Remember, the goal is to get to day +100. I’m all moved in to the condo and feeling all the…
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Transparency
Since we got the call on Monday our foot has not left the accelerator. We had been in such a “hurry up and wait” stance for the entire summer that the revelation of the dates felt catastrophic. I have sobbed every day this week. Every day. That’s not for dramatic impact. It’s the result of…
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We got the call
This update is a long time coming. Since my evaluation appointments on July 9 &10 we have been waiting to hear a consensus from the team regarding next steps. The evaluation appointments were tiring but overall uneventful. Now, a couple weeks later we are able to process and plan for next steps. The Ovary: My…
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We hit a speed bump
Our summer respite has been exactly what we needed. We have enjoyed vacations (NEVER FORGET-don’t ever fly American Airlines), time with friends, time with family and some typical summer craziness. Every day that I got lost in the day to day management of our family and our summer schedule I consider It a blessing. For…
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Reimagining Resilience 