Reimagining Resilience

Category: Chapter 1- Putting the puzzle pieces together

  • Remission, Praise God

    We got excellent news this week. My July 1 PET scan showed what we were all hoping, the cancer is gone. It’s a huge sigh of relief to be back on track with the plan. Ya girl’s had enough of these road blocks and detours. On to the second transplant. I had my third round…

  • Radiation Oncology and an update from the heart

    This morning I met with the radiation oncologist who presented me with a plan to do electron beam radiation therapy. We are targeting the entirety of the lower half of my body. In addition they are going to booster (hit harder) the spots on my legs and one spot on my arm that the biopsy…

  • Captain’s Log: Day +86

    I’m not going to beat around the bush. I had a PET scan and bone marrow biopsy done yesterday (11/6) The findings on the PET weren’t good. I’m not going to elaborate because I don’t fully understand them yet. My doctor is bringing me in to clinic tomorrow (I wasn’t supposed to go back till…

  • Ways to support us

    Tomorrow Cullen and I leave for my first round of chemotherapy at the Mayo Clinic. Despite the snow’s best efforts I was able to get all my pre-chemotherapy appointments accomplished last week. Shout out to my dentist who not only DIDN’T cancel my appointment due to weather but rather saw me earlier in the day…

  • Swimsuits and Snow Days

    This past weekend marked our family’s final week of normalcy, at least our old normal. The cancer community loves to use the term “new normal” when describing what the next year’s worth of rhythms will be. I used the term too when I worked in medical social work, so I don’t fault the theory. I’m only…

  • Treatment Plan

    Figuring out the treatment plan has been the greatest obstacle since obtaining my diagnosis in early December. All lymphoma is rare but the subtype I was diagnosed with is especially rare: primary cutaneous gamma-delta T-cell lymphoma. I would advise not to google it, the results are limited and grim. We had conferences with three major health…

  • Are you the match?

    Friends, After completing the chemotherapy protocol I will need a stem cell transplant. The search to find that match is starting today. Many of you have asked how you can help, even from far away. This is an easy way to do so. Even if you are disqualified from registering, please share the link in case…

  • I’m not a cliche

    January 2024 was destined to be a month of new adventures for us. We had just bought a house in Arizona due to a relocation for Cullen’s job and were making plans to spend one last Christmas in TN before starting our new chapter out west. The same week our house offer was accepted, I…