Back to the drawing board (with the words you’ve heard a million times before)

I am officially starting over from day 1 for treatment.

To recap since January 2025 we have realized:

  • my transplant from August 2024 failed/was rejected
  • I need a second transplant
  • While waiting to start my second transplant, I relapsed. (my lymphoma is back)
  • The relapse is going to require me to do both radiation and chemotherapy.
  • If I respond well to treatment, go back to remission, I will finally go back to transplant.
  • That transplant will hopefully be successful
  • This hell will be over

It’s a hamster running on a wheel. Like we worked hard and got nowhere in 2024. However, since diagnosis we knew the deal. We knew this cancer would come back and will KEEP coming back until I have a successful transplant.

My counts are currently too low for chemotherapy but my body IS RECOVERING itself. In the last few weeks we’ve noticed my counts are increasing. I’ve had more energy and have felt more like myself.

This week I have a bone marrow biopsy(4/8) and consultation with radiation/oncology (4/10).

The plan is to start radiation ASAP on the spots that are noticeable on my skin and when I’m healthy enough, chemo for the spots the PET scan showed that we cannot see.

Prayer requests:

  1. Mental stamina
  2. My body to continue to get stronger and healthier.
  3. We are contemplating changes that will sustain needs that are no longer short term. We’d love wisdom and a clear path.
  4. No lymphoma in my bone marrow
  5. Start radiation ASAP
  6. 1 million dollars 🙂

Thank you for being a part of my healing journey,

Danielle

My circus, my monkeys

I’m Danielle. Wife to Cullen. Mother of 3 wild spirits. Doing everything I can to stick around and watch them grow in to the humans they were meant to be.