New Year, Same Me

My donor graft is failing. There’s no need to sugar coat it at this point. It’s happening.

My blood counts all through the 100 days were “low but stable.” Not requiring any intervention besides a Neupogen shot every now and then to boost my white cells.

The week after Christmas I noticed a significant dive in my CBC counts and reached out for next steps. That included 3 blood and platelet transfusions in a week.

This week I also needed 2 units of blood and a unit of platelets.

I was seen in clinic to get an array of tests done and my bone marrow biopsy was moved up two weeks. All to try and figure out what is going on with my body.

The good news is there’s no evidence of malignancy. PET scan came back relatively clean and my bone marrow was clean of cancer.

The bad news is my donor graft percentage numbers are falling. My graft is failing.

We have an appointment on Tuesday 1/21 to review all the tests and put a plan in place to address next treatment steps. Some medication changes have already happened. Would you pray for wisdom and peace?

I briefly discussed heaviness with a friend this morning and it resonated with me that things have felt so heavy for such a long time. I understand everyone has been given their own struggles in this life and I’ve accepted this one is mine. If you’ve come along side me this year and are STILL reading this, thank you. I know it’s hard to hear heavy things but I appreciate you coming standing with me and lightening my load, even just a little.

We will continue to pray that my broken body will heal and my burdened spirit will lift. We will pray that my kids will know their mother and know how loved they are by me and how I fight on for them.

THEN WE WILL ALL GO ON VACATION

Thank you for being a part of my healing journey,

Danielle

My circus, my monkeys

I’m Danielle. Wife to Cullen. Mother of 3 wild spirits. Doing everything I can to stick around and watch them grow in to the humans they were meant to be.