Captain’s Log: Day +72

“If I can keep waiting well during my deepest pains, my perseverance produces character, my character produces hope. And the whole horrible, holy process produces change worth wanting”-Katherine Wolf

There hasn’t been much to update because I feel as though I’m in stem cell limbo. My counts are low but not low enough to cause major concern. My engraftment chimerisms are still mixed. One is 100%, my T-Cell line is still around 20%. We’ve talked to every doctor and the plan is still to wean me off immunosuppression medication and give my bone marrow time to recover.

Time.

To be honest, I’m struggling to be patient. I’m ready to put this whole scenario behind me; this whole year really. I’m anxious for healing and dare I say, some normalcy.

However it would be a disservice to mention that I have been spending a lot more time at home this month. I am in Nashville for clinic around Mondays and Thursdays, the rest of the time I’ve been spending at home. I believe fully that my heart, mind, spirit and body heal faster when I’m home with Cullen and the kids. The goal is to be home full time by Halloween and finishing out the 100 days with my family. Prayers are appreciated that we can avoid any illnesses during this time that would complicate my situation and win me a ticket back to the hospital.

Also we welcomed a new member of the family this month. The Mahans were in desperate need of adding a little joy to the house.

Meet Copper, our new Labrador retriever pup.

Important Dates

October 31: Move home day

November 21: DAY 100!!!!!!

Thank you for being a part of my healing journey,

Danielle

My circus, my monkeys

I’m Danielle. Wife to Cullen. Mother of 3 wild spirits. Doing everything I can to stick around and watch them grow in to the humans they were meant to be.