The countdown to transplant day has begun. Every day leading up to transplant has a (-) next to the number. Transplant day, August 13th, is day 0 and every day post transplant will be (+) Remember, the goal is to get to day +100.
I’m all moved in to the condo and feeling all the feels. I would however like to highlight the kindness I have seen from God.
Ryan (his wife Brooke and son Nolan) have been close family friends since Jacob and Nolan were 2. Ryan has been doing his chaplain interning at my hospital. He was able to come see me and may even be able to visit periodically during my stay. I’m grateful for this familiar face
All of our kiddos (including Annie) now know what we are up against. I mentioned earlier that I was able to give them each a special lovie.
Each lovie has a 20 second message in my voice, singing our special bedtime songs. These are made by Build A Bear.
It’s already proven to be a really special gift. I would recommend it for any family member who may have to have an extended absence.
Another way I will be connecting with my kids is doing something called “Mom Mail.” I’ve pre-written notes for every day I’m away. The kids will get to open it every morning and they will also be able to write me back using our special mom mail mailbox. Cullen will bring it to me weekly.
Today my “polly the port” was removed and my central line was placed. The central line will make it easier to receive all the treatment I’ll be getting. Thankfully, not as many needle sticks.
I don’t have a picture but I have been ABUNDANTLY blessed with books, puzzles, coloring books, calligraphy practice, crossword puzzles, crochet kits ETC. Thank you all for sharing your hobbies with me.
The prayer support has been on fire and I feel them daily. It’s also not lost of me that the last few messages I’ve heard from my local church as well as other outlets I routinely listen to have been pertinent. I’m learning that God doesn’t plan for these bad things to happen but HE DOES use them for good and for His purpose. The story isn’t over, if the story isn’t GOOD. That’s the truth I am clinging to right now.
My mom has travelled from Florida to be my caregiver. My MIL and FIL are currently here to help care for the kids so Cullen can continue to work.
Important dates:
August 7-11th– Chemo infusions
August 13th– TRANSPLANT DAY
Thank you for being a part of my healing journey,
Danielle
Reimagining Resilience 